Purpose of the Role:The Rare Disease ERN Data Manager is a critical role that will provide structure and leadership ensuring the accurate recording of clinical information and data across the rare disease ERN service. The Data Manager will be responsible for the collection, validation, analysis and sharing of data to advance research. The Data Manager will collaborate and work closely with the National Rare Diseases Office for national rare disease surveillance and reporting requirements as well as the provision of ERN service activity levels. This should in turn enhance service efficiency and improve patient experience and outcomes.This role presents an exciting opportunity to work within a highly motivated team and a dynamic environment, and to be involved in bringing advancements in health outcomes for children and young adults living with rare diseases in Ireland. The role offers opportunities for ongoing professional development, and the successful candidate will be provided with training and mentoring specific to their role.Essential Criteria:Significant experience in data management and healthcare informatics (or related field) working in a healthcare environmentDemonstrate the ability to gather, interpret and manage data using various tools and systems including Power BI and advanced Excel, including Pivot tablesKnowledge and experience of gathering and interrogating data using various tools and systems, including advanced ExcelExcellent planning and organisational skills, including using computer technology effectively as relevant to the roleExperience working in a demanding and challenging multi-disciplinary team environmentExperience in a role that has involvement dealing with a variety of internal and external stakeholders relevant to the roleExperience with Microsoft Office SuiteHow to Apply and Informal Enquiries:Applications for this post must be accompanied by a cover letter, setting out relevant experience that illustrates how the essential criteria listed above is met.The criterion for short listing is based on the requirements of the post, as outlined in the eligibility criteria.Please note that you must submit a cover letter with your CV, this forms part of your application and CV's will not be accepted without a detailed cover letter.The closing date for submissions of CV's and cover letter is Tuesday 11th November 2025 at 23.45pm. Applications must be completed through the advertised post onby clicking'Apply for Job'.Applications will not be accepted through direct email or any other method.For informal enquiries for this specialty/department, please contact For other queries relating to this recruitment process, please contact Talent Acquisition Specialist – PLEASE NOTE:CHI has transitioned to a process of a one commencement day per month for all new employees, CHI internal transfers and Secondments. This update to our Onboarding process is aligned to changes in our monthly/fortnightly payroll and with the launch of our new corporate induction program. This process enhancement ensures that we can thoroughly prepare for your arrival and facilitate a smooth transition in your onboarding journey.It is important for you to note that if you do not have your pre-employments and mandatory training completed in time, your commencement date will be deferred to the next available date.Below, you'll find the list of commencement dates for 2025 and 2026.December 15th 2025January 7th 2026January 12th NCHD rotation only)February 9th 2026March 9th 2026