CHI ERN Clinical Care Co-ordinator for Rare Disease Purpose of the Role: The Rare Disease ERN Care Coordinator will have a central role in the coordination of multidisciplinary rare disease care pathways, patient and family rare disease support, advocacy and education. In collaboration with the MDT and relevant stakeholders, the post holder will contribute to the delivery of a quality and effective rare disease service and identify service quality improvements through a patient partnership approach. The Care Coordinator will collaborate and work closely with the National Care Coordinator at the National Rare Diseases Office on (but not limited to) national data reporting requirements and standards and continuous quality improvement. The successful candidates will also interact with adult centres to promote a smooth transition for patients within the ERN to ensure continuity of care, support independence, and reduce the risk of poor health outcomes in the longterm. These roles presents an exciting opportunity to work within a highly motivated team and a dynamic environment, and to be involved in bringing advancements in health outcomes for children and young adults living with rare diseases in Ireland. The roles offer opportunities for ongoing professional development and the successful candidates will be provided with training and mentoring specific to their role. Candidates will have the opportunity to indicate a preference for specific co-ordinator roles at interview. The posts available are: MetaBERN - Full time (1.0 WTE) - The MetabERN focuses on inherited metabolic diseases and is driven by the principle of patient-centred care and a culture of continuous quality improvement. The National Centre for Inherited Metabolic Disorders (NCIMD) is the Irish tertiary referral centre for children with inherited metabolic (biochemical genetic) disorders. It is located at Children's Health Ireland @ Temple Street. We diagnose and care for patients affected by inherited metabolic disorders with a holistic and family-centred approach. The NCIMD is a full member of MetabERN since 2021. In the NCIMD, we have a multidisciplinary team with extensive experience in the acute and on-going management of inherited metabolic disorders. ERN Cranio - Full time (1.0 WTE) - ERN CRANIO is the European Reference Network for rare and/or complex craniofacial anomalies and ear, nose and throat (ENT) disorders. The National Paediatric Craniofacial Centre (NPCC), Children's Health Ireland (CHI) at Temple Street and The Dublin Cleft Centre (DCC), CHI at Crumlin and Temple Street are ERN members since 2021. Both cleft and craniofacial can be considered lifelong conditions, with treatment protocols that frequently continue into the late teens and early 20s. In CHI, young people transition to adult healthcare services at the age of 16. This early transition point highlights the need for a structured, developmentally appropriate approach that prepares young people for the shift in care responsibilities and service environments. The post holder will be responsible for developing and delivering a robust, structured coordination of the transition programme for children and young people with cleft and craniofacial conditions in line with the national framework. The post holder will coordinate care between CHI and adult services in both St James's Hospital and the Mater Misericordiae Hospital. Endo ERN - Part time (0.5 WTE) - The Department of Endocrinology at CHI comprises 3 endocrinology units (Crumlin/Temple St., Tallaght) which will come together in the NCH to form an exciting, dynamic department treating a wide variety of rare and ultra-rare endocrine conditions, many of which have multi-system involvement requiring care from other medical and surgical specialities. This is an opportunity to be part of a world-class team delivering excellent care, driving research and collaboration across CHI, with adult healthcare providers of rare endocrine disease care including the Adult ENDO-ERN centre at Beaumont Hospital, and national academically affiliated partners and international registries. ERN Transplant Part time (0.5 WTE) - - The National Paediatric Nephrology Transplant unit is located at CHI at Temple Street where kidney transplants on children under 16 years of age are performed before they transition to adult services. Joint transition clinics are held with Nephrology Consultants from Beaumont Hospital. Dr Clodagh Sweeney Consultant Nephrologist is the Lead of ERN Transplant-Child. ERKNet - Part time (0.5 WTE) - The National Paediatric Nephrology Service provides services at both CHI at Temple Street and Crumlin including assessment and management of both acute and chronic disease including dialysis and renal transplants. There are over 150 rare renal conditions with an estimated 2 million people living in the EU with a rare renal condition. Prof Atif Awan Lead Clinician is the Co-Lead of the European Rare Kidney Disease Network (ERKNet) with adult services located at Beaumont Hospital. ERN BOND - Part time (0.5 WTE) - The Centre for Rare Bone disorders (Our Tribe) is the paediatric co-lead for ERN BOND based in the Department of Endocrinology at CHI Temple St. There are over 700 rare bone disorders which affect the size, shape and strength of bones. Our Tribe has a strong research arm as well as dedicated clinics in skeletal dysplasia, osteogenesis imperfecta and inherited rickets and established links with Irish and international patient organisations. The adult centre for ERN BOND is based at St Vincent's University Hospital. Essential Criteria: Candidates must at the latest date of application: Be a Health Care professional with a recognised professional qualification in a Therapy or Nursing grade AND Be entitled to be so registered on an appropriate professional register e.g. CORU, NMBI or other appropriate clinical/professional register OR Be eligible for membership ( OR Health and social care therapy applicants who satisfy the conditions set out in Section 91 of the Health and Social Care Professionals Act 2005, (see note 1 below*), must submit proof of application for registration with the Registration Board at CORU. The acceptable proof is correspondence from the Health and Social care Registration Board at CORU confirming their application for registration as a Section 91 applicant. All candidates must have 5 years full time (or equivalent) years post qualification clinical experience of which 4 years full time are preferably in a relevant clinical specialty area and in a post within the healthcare service, which demonstrates evidence of a management/ leadership role in a multidisciplinary/interdisciplinary team. All candidates must demonstrate evidence of continuing professional development relevant to the clinical specialty area in the form of post-graduate qualifications or relevant courses. All candidates must demonstrate achievement in the areas of clinical audit, quality improvement initiatives, practice development, teaching and research. All candidates must demonstrate experience of interacting with multiple internal and external stakeholders as relevant to the role. All candidates must have the requisite clinical, managerial and administrative knowledge and ability (including a high standard of suitability and management ability) for the proper discharge of the responsibilities and duties of this role. On appointment, practitioners must maintain annual registration on their professional register maintained by CORU or NMBI and must confirm annual registration with CORU or NMBI to the HSE by way of the annual Patient Safety Assurance Certificate (PSAC). How to Apply and Informal Enquiries: Applications for this post must be accompanied by a cover letter, setting out relevant experience that illustrates how the essential criteria listed above is met. The criterion for short listing is based on the requirements of the post, as outlined in the eligibility criteria. * Please note that you must submit a cover letter with your CV, this forms part of your application and CV's will not be accepted without a detailed cover letter. The closing date for submissions of CV's and cover letter is Tuesday 11th November 2025 at 23.45pm. Applications must be completed through the advertised post on by clicking 'Apply for Job'. Applications will not be accepted through direct email or any other method. For informal enquiries for this specialty/department, please contact For other queries relating to this recruitment process, please contact Talent Acquisition Specialist - PLEASE NOTE: CHI has transitioned to a process of a one commencement day per month for all new employees, CHI internal transfers and Secondments. This update to our Onboarding process is aligned to changes in our monthly/fortnightly payroll and with the launch of our new corporate induction program. This process enhancement ensures that we can thoroughly prepare for your arrival and facilitate a smooth transition in your onboarding journey. It is important for you to note that if you do not have your pre-employments and mandatory training completed in time, your commencement date will be deferred to the next available date. Below, you'll find the list of commencement dates for 2025 and 2026. January 7th 2026 January 12th 2026 ( NCHD rotation only) February 9th 2026 March 9th 2026 To be considered for this role you will be redirected to and must complete the application process on our careers page. To start the process, click the Apply button below to Login/Register.